Rowan and I have been away from home for 127 days now.
We have been in the hospital for 105 days straight.
Since the first transplant failed, Rowan has had a zero ANC for 8 weeks...55 days!
Today would have been Day +92 from the first transplant, if that still counted.
Instead, it is just Day +17 from transplant #2.
It is so dangerous to have a ANC of zero. It means that he has had no immune system to fight off bacteria or viruses on his own. His wounds have not been able to heal properly without counts either. They have had to cover him so broadly with IV antibiotics and antifungals, that the bacteria are growing resistant. He has had 3 different blood infections, and had to have one central line pulled as a result. He has also battled the virus in his brain. Without counts, the doctors have had to support and save him, many times over the past few months. To say we have been scared is an understatement. Each fever, stopped us in our tracks. Each cough, made us hold our own breath. Waiting for each call from the lab after cultures were drawn, made us nauseous. But, we trudged on. We prayed. We believed. We waited for counts, but we waited with hope in our hearts.
(to be continued...)