"Our Little Trooper"

"Our Little Trooper"
"Let me live, that I may praise you!" Psalm 119:175

Tuesday, March 22, 2011

Sad to be here glad to be here...

Rowan woke up having a kind of rough morning: feeling sick, crying, saying that he wanted to be home now already.

Then he reached for his "Chwissie Wion", hugged it tight and closed his eyes for a minute.

When he opened them he said: "Ok I feel better. Its good to be here and bad to be here. I'm sad to be here and glad to be here."
He said, "Chrissie really is helping me. And at least there are 3 good things about hosipals...toys, bisitors, and getting better."

Thank you Lorraine and the entire Patterson Family, for Chrissie's story and for the jingly "Chwissie" lion to remind him of her. As you can see, good or bad, it never leaves his side in here, especially when he is sleeping. We love you!

Monday, March 21, 2011

"...But today could be better..."

Sorry I haven't posted a blog for a couple weeks. Rowan's been running fever for several weeks with his neupogen bone marrow infusions and then spiked a high fever on St. Patrick's Day, landing us back int he hospital last week. We are still here while he battles a septic infection, with two different bacterial bugs in his bloodstream. He has been getting 6 rounds of iv antibiotics each day. And now he's come down with some type of "normal sickness" while he is here too, and is running a fever again and has a nasty cough. They just did a chest xray to check on that and we are waiting for results. He is supposed to be getting another neupogen infusion here today as well as an echocardiagram to check for colonization of bacteria in the heart wall. Yesterday we had a little mis-hap with his g-tube, breaking off a piece of plastic inside it so we had to remove the end of his tube, clamp him off with hemastats and try to find someone to repair it.

Despite all of this, Rowan has kept his ever-positive outlook. This morning when he woke up, after a rough night of fevers, coughing fits and waves of nausea, Rowan woke up with this wise statement..."well yesterday was horrible but the good thing is that we wake up every day until we die and the new day COULD be better...and today WILL be better".

Gotta love this kid!

Thursday, March 3, 2011

Pancakes for Rowan!

Despite all his dietary limitations, Rowan doesn't really complain much about not getting to eat many regular foods by mouth, even though everyone else around him can. He does however LOVE to smell our food. And pancakes has been the one thing that he says he hopes he can have when he gets in heaven...he just thinks they smell so great. Well I have racked my brain for 2 years, checked all kinds of recipes and natural food stores, trying to figure out a way to make him some type of pancake. So he doesn't have to wait to get to heaven to have pancakes:-) He can't have any type of protien for sure, and no eggs, milk, or any type of flour, etc. So, I have thought about potato pancakes but haven't come up with a way to make them stick together like pancake batter. Well, last week I finally came across a product that is a mix for potato pancakes, but this one only has potato starch to bind it together. I was jumping up and down in the aisle when I read the ingredients. You have no idea how happy I was! Rowan cried happy tears when I got home. I made them and he has been eating them for a week now. Pancakes, finally, pancakes for Rowan!