Rowan's Story: Sad to be here glad to be here...

Tuesday, March 22, 2011

Sad to be here glad to be here...

Rowan woke up having a kind of rough morning: feeling sick, crying, saying that he wanted to be home now already.

Then he reached for his "Chwissie Wion", hugged it tight and closed his eyes for a minute.

When he opened them he said: "Ok I feel better. Its good to be here and bad to be here. I'm sad to be here and glad to be here."

He said, "Chrissie really is helping me. And at least there are 3 good things about hosipals...toys, bisitors, and getting better."

Thank you Lorraine and the entire Patterson Family, for Chrissie's story and for the jingly "Chwissie" lion to remind him of her. As you can see, good or bad, it never leaves his side in here, especially when he is sleeping. We love you!

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In Memory of Rowan's 11th Birthday

http://a.co/4bNkv62

*Click the link above to purchase a gift in memory of Rowan's 11th birthday.*

In memory of Rowan's 11th birthday, July 21, we are hosting a virtual birthday party to benefit Methodist Children's Hospital (MCH) in San Antonio, where Rowan spent much of his childhood battling for his life. All gifts purchased through this registry will be delivered in person to MCH on Rowan's birthday, July 21, 2017. The toys will be donated to the Child Life Department at MCH and placed in the new play rooms at MCH for many pediatric patients to enjoy during their hospitalizations. The toys on this registry represent a few of Rowan's favorite things. We all know Rowan had such a huge heart for giving and making the good, so this party in his memory is a way of carrying out his legacy by celebrating and doing the things that mattered most to him. Thank you for being a part of carrying out Rowan's legacy, making the good, and honoring Rowan's powerful life while remembering his 11th birthday on July 21, 2017.

In ICU, post vp shunt surgery...precious angel.

In October of 2010, Rowan started having severe headaches again. He had two spinal taps, just three days apart due to increased cranial pressures (double or triple what they should be). They removed over 55 ccs of excess spinal fluid trying to relieve his headaches. Eventually, when the pain was just too severe and his pressures weren't coming down, he finally had to have a vp shunt placed. When he woke up the next day, he told one of the doctors that he would give him a free autograph for helping get rid of his headaches. A couple days later, he made a sign for me to put in the window of his hospital room, that he says said "Open for business. Autographs $15. Free drink with purchase".

Another battle wound...this one from his Chiari malformation brain surgery.

In January of 2009, Rowan had craniectomy/laminectomy surgery to correct a brain malformation that was obstructing his flow of spinal fluid and causing headaches and other neurological symptoms. They removed a small piece of the base of his skull, shrunk up the bottom portion of his brain, and removed part of his C1 and C2 vertebrae to free up space for the spinal fluid to flow. When we told Rowan that he would be going in to the hospital to get his brain fixed, he thought for a minute and then said, "Will I see Logan (favorite nurse) and can I eat baby ice cubes when I wake up?" When we said yes, he simply said "Ok, Let's do it!"

"Our Little Trooper"

Tuesday, March 22, 2011

Sad to be here glad to be here...

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