Rowan's Story: "I wish I was a normal kid like Zoe and Ian..."

Sunday, June 10, 2012

"I wish I was a normal kid like Zoe and Ian..."

A couple nights ago, while riding home in the car with Zoe and I, Rowan said "I wish I was a normal kid like Zoe and Ian". When I asked him why he was saying that he said "Well, I don't mind having Shwachman Diamond but I wish I didn't have to be hooked up so much." I told him I was sorry he did too, but asked if he knew how special he was though. He said he did and then he got quiet for a few minutes, before coming up with the following explanation to Zoe and I...

"Ok, I got it, but this is kinda complicated guys... I know God wants me to be sick, but not because he is being mean to me or wants to hurt me or anything. He needs me to be this way so I can be strong and brave for other people, right? And, it's not like I want to be sick, but I guess I kinda do, because I need to be that way to show other people how to be brave and strong too. And if I didn't show them how to do that, then they would have to do it all on their own. So that is why I have to be sick, right? I guess it is all ok and it does make sense...and I guess God's plan IS my plan too!"

Once again, pretty wise words for a 5 year old...and he figured it all out on his own, Zoe and I just listened in amazement.

5 comments:

RonaJune 10, 2012 at 6:54 PM
Wow. He's such an amazing boy! I'm so inspired by his faith in God's goodness. Thanks for sharing his Godly wisdom/connection :)
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MarisaJune 10, 2012 at 8:13 PM
Precious!
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Dennis SabatinoJune 11, 2012 at 4:59 AM
Out of the mouths of babes come the most amazing things. It is no wonder Jesus tells us we will not enter the Kingdom unless we do as one of these!
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DonnaJune 11, 2012 at 11:28 AM
Love, love, love this! What Godly wisdom! Thanks for sharing!
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AnonymousJune 11, 2012 at 2:38 PM
Rowan you're a cool little dude. I pray that God will send his angels to protect you and plead the blood of the lamb over you...No sicknest shall prosper over you. In Jesus name we ask it. Amen.
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In Memory of Rowan's 11th Birthday

http://a.co/4bNkv62

*Click the link above to purchase a gift in memory of Rowan's 11th birthday.*

In memory of Rowan's 11th birthday, July 21, we are hosting a virtual birthday party to benefit Methodist Children's Hospital (MCH) in San Antonio, where Rowan spent much of his childhood battling for his life. All gifts purchased through this registry will be delivered in person to MCH on Rowan's birthday, July 21, 2017. The toys will be donated to the Child Life Department at MCH and placed in the new play rooms at MCH for many pediatric patients to enjoy during their hospitalizations. The toys on this registry represent a few of Rowan's favorite things. We all know Rowan had such a huge heart for giving and making the good, so this party in his memory is a way of carrying out his legacy by celebrating and doing the things that mattered most to him. Thank you for being a part of carrying out Rowan's legacy, making the good, and honoring Rowan's powerful life while remembering his 11th birthday on July 21, 2017.

In ICU, post vp shunt surgery...precious angel.

In October of 2010, Rowan started having severe headaches again. He had two spinal taps, just three days apart due to increased cranial pressures (double or triple what they should be). They removed over 55 ccs of excess spinal fluid trying to relieve his headaches. Eventually, when the pain was just too severe and his pressures weren't coming down, he finally had to have a vp shunt placed. When he woke up the next day, he told one of the doctors that he would give him a free autograph for helping get rid of his headaches. A couple days later, he made a sign for me to put in the window of his hospital room, that he says said "Open for business. Autographs $15. Free drink with purchase".

Another battle wound...this one from his Chiari malformation brain surgery.

In January of 2009, Rowan had craniectomy/laminectomy surgery to correct a brain malformation that was obstructing his flow of spinal fluid and causing headaches and other neurological symptoms. They removed a small piece of the base of his skull, shrunk up the bottom portion of his brain, and removed part of his C1 and C2 vertebrae to free up space for the spinal fluid to flow. When we told Rowan that he would be going in to the hospital to get his brain fixed, he thought for a minute and then said, "Will I see Logan (favorite nurse) and can I eat baby ice cubes when I wake up?" When we said yes, he simply said "Ok, Let's do it!"

"Our Little Trooper"

Sunday, June 10, 2012

"I wish I was a normal kid like Zoe and Ian..."

5 comments: