First of all, you have to understand that he hasn't eaten anything by mouth in 9 days, and only had half of a popsicle 10 days ago. He has either had nothing running at all, or just pedialyte running through his g-tube. His only source of nutrition has been his IV tpn that is fed through his Broviac central IV line in his chest. He has had major belly pain and gi bleeding for weeks and weeks. But, does Rowan complain about not being able to eat? Of course not. Look what three amazing things he has done instead.
1. Rowan loves to play with Playdoh, so instead of complaining about what he can't eat, he has just made plates of food that he wishes he could eat, and made me pretend plates of food. One day he had all of us in the hospital room making sushi and chocolate chip cookies. It's kind of heart breaking, but amazing at the same time.