"Our Little Trooper"

"Our Little Trooper"
"Let me live, that I may praise you!" Psalm 119:175

Friday, October 26, 2012

Someday we'll all be better...even me!

As you may know, Rowan is back in the hospital again, this time fighting something in his cerebrospinal fluid. He started running fevers, losing all his hair and had major swelling to the back of his head/neck.
Here is just a portion of what he has gone through in a little less than 48 hours:
Rushed to the er with 103.2 fever and swelling of the head and neck
Brain CT scan
Shunt Tap
Chest Xrays
Repeat Brain CT scan with contrast
Shunt Series of Xrays
Flu test
Urine Culture
Blood Culture
CSF Cultures
Multiple Hematology Labs
Vitals taken every 2 to 4 hours
Surgery (#54) to tap and drain off csf fluid from incision at base of his skull
Fluid leaking from his head
14 rounds of heavy iv antiobiotic infusions
Pain levels of 7-10
Extreme nausea and feeding issues
Neuro exam after neuro exam
Doctor after Doctor coming in to examine him
Specialist after Specialist coming in to consult
Neupogen infusion
IvIg infusion
etc, etc, etc...
And he goes down in the morning for surgery #55.
Sounds like a lot right? Would probably get you down or make you feel sorry for yourself right? Not Rowan, never Rowan.
I had to tell him today that a friend of ours lost their sister this morning, to a battle with Cancer. He immediately said, "She's in a better place than we are...and now all her dreams can come true!" Then tears welled up in his eyes and he said "I'm making mySELF cry! ...But happy tears. I'm happy for her. She's better now. Someday we all will be. Even me!"
Yes, sweet Rowan...Someday we all will be better...even you! Someday you won't have to go through all this pain and trauma. For now, you continue to make me feel better every single day!
Here is a highlight from today...a special visit from his best therapy dog friend, Cindy...true love!


  1. What a trooper his and cindys hair matches :*)! so sorry he is in there for Halloween! all though he cont' to think of others like always! sending lots of prayers and smiles!
    amy k.

  2. Dear Rowan,

    You don’t know me but I am new to reading your mum’s blog here and have been reading your story and can I say that I am completely enamored by you.

    I am writing from the other side of the world but reading your story has brought both tears and joy to me.

    Your generous spirit and love of life is an inspiration. I believe you have more love and compassion in your six years than most adults in a lifetime.
    You are an amazing little man. I hope you know that and never forget it. You are so special!

    I pray that you get well so very soon. I feel so sad to hear from this latest post that that you are in hospital again. Please stay well and grow up big and strong…the world needs you.

    Hugs & Prayers,