Rowan is finally begining to resemble his normal self today. He even told me, "Now I'm starting to recover like a boss". Yep-that's Rowan:-)
This also means that he is starting to get his appetite back...However small of an issue that typically is for him, it is still an indicator that he is healing. As you know, 90% of his nutrition is recieved through nightly 12 hour intravenous tpn feeds, and 18-20 hour a day daily g-tube, non-allergenic, amino acid, man made formula, enteral g-tube feeds. Otherwise, he mainly eats potato products...one of the only foods he is not allergic to. Well, this is how I just "KNOW" he is starting to feel better:
Tonight Rowan asked me to make him potato pancakes, which for him consists of a mixture of potato flour, potato starch and water, pan fried in olive oil. But, its what he said when he ate them that made me realize how much better he was feeling...
"Mommy, thank you, these are perfect! I know I didn't really want to eat for a while, but now I do, ok? Tomorrow I want easy fries, and waffle fries, and then I guess baked potato. The next day I want baby hashbrowns, skinny hashbrowns, and then those potatoes you made me during the end of the Olympics, when One Direction was playing, you know, those potatoes? Then I guess the next day I want homemade potato chips...if you know how to make those yet, and then I guess surprise me after that, with any other potatoes we have, or any kind you can get."
This child literally recieves most of his food through a tube in his stomach or an iv line in his chest, and during this recent hospitalization and recovery period, he has not eaten anything by mouth for 2 weeks. He has lost several pounds during this ordeal and spent most of his days just laying on the couch, sleeping or hurting. Yet what does he get excited about??? The very limited choice of foods he has in his repertoire...potatoes! Once again, this kid has blown me away with his contentment, and his actual joy, found once again in the simple things...like potatoes.
Hi My name is Jenna
ReplyDeleteRowan you are a, handsome prince, cute blessing, special earthly angel, and precious gift and miracle. Rowan is a brave warrior, smilen champ, inspirational hero.
I was born with a rare life threatening disease, developmental delays, and 14 other medical conditions.
Here is a new poem I wrote, it’s called it takes courage:
It Takes courage to love
Like a dove
It takes courage to fight,
It takes courage to do what’s right
It takes courage to stay strong,
When things go wrong
It takes courage to write a song
It takes courage to live
It takes courage to give
It takes courage to fight this beast
It takes courage to be brave
It takes courage to smile and wave
It takes courage to keep positive
Keep on fighting!
It takes courage to win!
http://www.miraclechamp.webs.com